Pennsylvania CHERUBS Blog


CHERUBS The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support


“The world’s first and largest organization for families and medical care providers affected by CDH. Where Congenital Diaphragmatic Hernia Awareness is raised every day of the year, research is more than just an abstract word or a future goal and our main objective always has been and will be providing information, awareness, research and support. The CDH Support Group about ALL families and for ALL families – putting families and the CDH community first since 1995.”

CHERUBS was created in February, 1995 by Dawn M. Torrence. Dawn is the mom of Shane Torrence (1/28/93-9/11/99), born with left-sided CDH and multiple birth defects. Immediately she searched for a support group but there were none available that could help her. After spending hundreds of hours in the hospital’s medical library and finding support only from parents met at the hospital, Dawn felt a great need for a CDH support group.
With the help of Shane’s surgeon, Dr. Lesli Taylor, and the support of her husband, Jeremy, Shane’s nurses, and friends made at the hospital, CHERUBS was started. CHERUBS is founded in memory of, and named for, Preston Montague and Andrea Jones, two very special CDH babies that were Shane’s hospital roommates, and for all CDH babies that do not survive.

We started out very small with just a typewriter, kitchen table, $100.00 in donations, and 2 members. It took us 3 months to figure out how to get Non-Profit Status, but we did it! In 1996 we attended our first conference- the American Pediatric Surgical Convention in San Diego. Finally, the word was out and we started to grow.

By 2006 we grew to include over 1700 members from 37 countries and all 50 states, organized 90 volunteers, have been featured in newspaper articles, quoted in magazines, conduct research, and became the CDH referral center for most hospitals and other support groups. We still struggle and learn as CHERUBS grows, but the work is rewarding.

CHERUBS is run solely by volunteers. No one is paid for their work with CHERUBS and all volunteers work around their families and other jobs. CHERUBS runs solely on donations.

Our goal is to not only help parents of children born with CDH but to lead the medical community into finding the cause and prevention of this devastating birth defect.


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  • pacherubs: Would love to see you guys there is you can Kels!!
  • Kelsey: I hope that our family can come, but it is kind of a long drive. We are moving to Ohio in July, so maybe we will have to plan a trip to Ohio that week
  • pacherubs: You are so very welcome Kylene! I will keep you updated and look forward to hopefully seeing you at the get together!


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