Pennsylvania CHERUBS Blog

Archive for April 2009

I am proud to announce our get-together plans are finalized!

June 6th, 2009
12:00pm – sunset

South Park, PA, 15129
www.county.allegheny.pa.us/parks

Sunny Slope Pavilion
Sunny Slope Lane

The park includes many actvities for guranteed fun!

Activities available throughout the park include but are not limited to:

BMX Track
Golf Course
Wave Pool
Game & Nature Preserves

Our pavillion includes a small play area for children with swings and slides!

The PA Get Together is open to all members, but ask that only CHERUBS members and their families attend.

Drinks, Hotdogs and Hamburgers will be cookin’ but I do ask that members attending bring chips, deserts or a small side dish.

Please RSVP to Kate no later than May 27th via phone, 412-414-7073 or kcrawford@cherubs-cdh.org, or PM.

 

HOPE TO SEE YOU THERE!!!

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On May 17, 2009 we invite all houses of worship, clubs and organizations to join us in raising Congenital Diaphragmatic Hernia Awareness!!!!

Churches and other houses of worship are a great place to raise awareness – their service programs often talk about charity work that they are involved in. We are asking all churches to include just a few paragraphs about CDH in their church bulletins on May 17, 2009. 1 church can raise awareness with 100’s of people! If we all get our churches, friends and family’s to join in with their churches, plus clubs and other organizations…. we can raise awareness around the world!!!!

“Churches for Cherubs” is just a rough draft name… we really don’t have a name for this event. I just like the sound of that name.  But it does include ALL churches, temples, synagogues, clubs, organizations, etc. Other CDH groups are welcome to participate and use a different name or “Churches for CDH” or “Day of Prayer for CDH” or whatever they’d like to join in! 

Also, besides the educational part of this event… we would really like to ask those of you who pray to do so on this day. Pray for the babies and families affected by CDH, pray for the researchers and doctors and nurses. Pray for the end of Congenital Diaphragmatic Hernia. No matter your beliefs – please think positive thoughts to the end of CDH so that no more babies and families will suffer from this devastating birth defect.

You can ask more than 1 church to participate – invite every church in your town or all the churches in your district!

We don’t want to exclude those who don’t go to church. If you don’t go to church, you can participate in other ways! You can hold an event such as a balloon release or candle lighting ceremony. You can have a fundraiser. You can just wear your CDH Awareness clothing or a ribbon button and tell people about CDH.

How do we do this? Just take the following paragraphs to your pastor / rabbi / priest / leader and ask them to print them in the church bulletin for Sunday, May 17, 2009. Feel free to use any of our graphics or your cherub’s photo in the bulletin!!

Please light candles at 7:00 pm in your time zone and say a prayer (or wishes)… that way we can have it continuously going around the world for 24 hours.

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The Holiday Inn Select San Antonio Airport
77 NE Loop 410
San Antonio, TX 78216
210-349-9900

http://www.hisairport.com

CHERUBS Room Rate is $89.00
CHERUBS Room Rate + Breakfast for 2 adults is $97.00

Breakfast is not free with your room! I’m sorry, we tried, but this is the best we can do! Feel free to bring milk, cereal, etc if you want to save money! I think kid’s do eat free in the dining room (per their site).

Rooms come with coffee makers, microwaves and mini fridges. There is a pool, restaurant, bar and fitness center. Free internet.

To receive the CHERUBS discount you *MUST* tell them you are CHERUBS members when you book the room and you must book it for July 22-25th or longer. We have to book 25 rooms to get our discounts and freebies so please, please, PLEASE stay at this hotel!!! It’s definitely the best value around anyway!!! 

Tentively, here’s our schedule:

July 22, 2009 – Check In
July 22, 2009 6:00 pm to 9:00 pm – Pizza Party and Introductions
July 23, 2009 8:00 am to 12:00 noon – Conference
July 24, 2009 8:00 am to 12:00 noon – Conference
July 25, 2009 8:00 am to 12:00 noon – Conference
July 23, 2009 – Check Out

That gives everyone the afternoons & evenings to go play.

Our guest speakers will speak on CDH Research, Genetics and Repair – including the head of the CDH Study Group, Dr. Lally. Round table discussions will be held for both parents of survivors and grieving parents.

There will be free babysitting during conference hours for the kids (volunteers needed!) and entertainment for them too (clown, magician, etc).

There is no conference fee, you just have to be a member of CHERUBS to attend!

You are responsible for your own lodging, food and other travel costs.

So far it looks like there will be about 150 in attendance!!! We have members coming in from Australia, Mexico, Great Britain, Canada and Italy as well!!! This is truly a CHERUBS INTERNATIONAL Conference!!! 

We hope to see you all there!!!

 

 

 

Conference Logo Items available at http://www.cafepress.com/cherubs/6448749



  • None
  • pacherubs: Would love to see you guys there is you can Kels!!
  • Kelsey: I hope that our family can come, but it is kind of a long drive. We are moving to Ohio in July, so maybe we will have to plan a trip to Ohio that week
  • pacherubs: You are so very welcome Kylene! I will keep you updated and look forward to hopefully seeing you at the get together!

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