Pennsylvania CHERUBS Blog

Archive for December 2008

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I hope that you all had a wonderful holiday season!

 

We have started some new  groups on Facebook:

CHERUBS CDH Cause for Facebook – http://apps.facebook.com/causes/44070?m=7bf7bab2

Group to Stop The “Congenital Diaphragmatic Hernia Awareness” Trademark – http://www.facebook.com/group.php?gid=56377210497

CHERUBS Facebook Group – http://www.facebook.com/group.php?gid=56377210497#/group.php?gid=2243563143&ref=ts

CHERUBS Fan Club Page – http://www.facebook.com/group.php?gid=56377210497#/pages/Wake-Forest-NC/CHERUBS-Congenital-Diaphragmatic-Hernia-Research-Awareness-and-Support/37214172005?ref=ts

CHERUBS Australia Facebook Group -http://www.facebook.com/group.php?gid=56377210497#/group.php?gid=14672084879&ref=ts

CHERUBS UK Facebook Group – http://www.facebook.com/group.php?gid=56377210497#/group.php?gid=8375535821

 If you are an avid FB’er ( like me =] ) please be sure to check out groups!

 

::REMINDER::

We are still working together to fight the trademark of “Congenital Diaphragmatic Hernia Awareness”
To sign the petition: http://www.ipetitions.com/petition/cdhawareness

 

Help us help families!

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If you’re having any trouble logging on to the site, the following are administrators for the site and can help you get logged in:

Stephanie – solivarez@cherubs-cdh.org
Barb – bwagner@cherubs-cdh.org
Danielle – dkessner@cherubs-cdh.org
Corin – cnava@cherubs-cdh.org
Tara – thall@cherubs-cdh.org
Dawn – dawn.williamson@cherubs-cdh.org

Send an e-mail and they will be with you as soon as they can! Thank you for your patience!!

On April 1, 2008, Elizabeth Doyle-Propst, CEO of Breath of Hope, Inc, filed a trademark request with the United States Patent and Trademark Office to own the rights to the phrase “Congenital Diaphragmatic Hernia Awareness” and a logo of a turquoise ribbon. This request was initially denied. It was resubmitted without the logo and went onto the Supplemental registry on September 17, 2008. Preceding and following this registration, Breath of Hope, Inc. filed complaints and sent threatening correspondence to other CDH organizations and families who used the term “Congenital Diaphragmatic Hernia Awareness”.

On December 4, 2008, CHERUBS filed a Petition to Cancel with the United States Patent and Trademark Office against the trademark “Congenital Diaphragmatic Hernia Awareness”.

It is our goal, along with 7 other CDH organizations and over 4000 CDH families and medical care providers who signed an on-line petition, that this trademark be canceled so that all people affected by Congenital Diaphragmatic Hernia be able to raise awareness without the threat of lawsuits. Congenital Diaphragmatic Hernia is a severe, and often deadly, birth defect that affects over 1600 babies each year in the United States alone and it would be extremely detrimental for one person or organization to dictate who can raise awareness for this birth defect. Because threats and complaints have been filed in the past and recently by Breath of Hope, Inc against organizations and persons using the term “Congenital Diaphragmatic Hernia Awareness”, we felt that we had no choice but to stand up for CDH families and to fight for their rights to raise awareness.

It is our sincere hope that the United States Patent and Trademark Office will see that it is in society’s best interest to cancel this trademark. We also hope that Breath of Hope, Inc and Elizabeth Doyle-Propst will refrain from any further attempts to harm members of the CDH community and will handle this matter in a mature, professional, non-vindictive and compassionate manner and put CDH families and their awareness rights first and foremost – as should be the behavior of any non-profit organization for families affected by Congenital Diaphragmatic Hernia.

http://ttabvue.uspto.gov/ttabvue/v?pno=92050284&pty=CAN&eno=2
http://ttabvue.uspto.gov/ttabvue/v?pno=92050284&pty=CAN&eno=2

Help us stop this trademark by signing our petition at: http://www.ipetitions.com/petition/cdhawareness/

http://www.compassionatefriends.org/

Every year since 1997 CHERUBS members have participated in National Children’s Memorial Day. This was started by Compassionate Friends in remembrance of all children lost and they have 1000’s of volunteers who work very hard to have this day passed every year. This includes children of all ages, including those not yet born, and includes children lost from all diseases, birth defects, accidents, murders, suicides – ALL children. Because we have several cherubs who were lost over 1 yr old, the Pregnancy and Infant Loss Day didn’t encompass all of our cherubs – National Children’s Memorial Day does. It also allow grieving parents to meet with other local grieving parents in their areas. This event occurs every year on the 2nd Sunday of December and proclamations by the Senate and President are signed. Proclamations are also signed by other heads of state around the world.

Each year, most of our grieving families light candles at 7:00 pm – with each time zone this creates a continuous light around the world for 24 hours.

Please visit our home page: www.cdhsupport.org to see our new design for NCMD. In memory of our angel cherubs. If you would like your cherubs added, please let us know.



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  • pacherubs: Would love to see you guys there is you can Kels!!
  • Kelsey: I hope that our family can come, but it is kind of a long drive. We are moving to Ohio in July, so maybe we will have to plan a trip to Ohio that week
  • pacherubs: You are so very welcome Kylene! I will keep you updated and look forward to hopefully seeing you at the get together!

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